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HCM support

Whether you’re looking to understand more about your symptoms or have recently been diagnosed with HCM, here are some helpful organisations and resources.

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UK support groups  Specialist helplines

Tired? - Short of breath? - Rapid Heartbeat? - Chest pain? - Dizzy

Patient perspective

Searching for answers when you’re struggling with unexplained symptoms can be a long road with many turns along the way. See how others navigated their journey.

Steffi shares her story about finding the cause of her symptoms and being diagnosed with HCM. Steffi was compensated for her time in the creation of this video.

Descriptive transcript available here

Ian shares his personal journey from when he first experienced symptoms to when he received his diagnosis. Ian was compensated for his time in the creation of this video.

Descriptive transcript available here

Patient Advocacy Groups

In addition to talking to a specialist medical team, you can visit the websites of these advocacy groups and charities for more information about HCM and additional support.

Talk to a cardiac nurse

Useful helplines for anyone wanting to seek support from a specialist nurse.

Downloads

Infographic download

Download our handy infographic for everything you need to know about HCM

CV-GB-2400133
Date of Preparation: July 2024